In 2014, the LGMD Awareness day initiative was created to promote the 30th day of September as the national LGMD awareness day.
Since then, every year on that day, thousands of people in north America and beyond aim to draw attention to these rare degenerative conditions through social activities and commemoration. The LGMD2i Research Fund is proud to be part of this initiative. In celebration of the 10 year anniversary, we created this timeline to highlight the amazing advancement and progress that have been achieved since mutations in the FKRP gene were shown to be the cause of LGMD2I (aka LGMDR9), a LGMD subtype and the focus of our mission.